Stories - Our Kids
A Deep Breath of Gratitude
Giving back to Children’s Hospital
Despite having cystic fibrosis, Dallas Jonasson is living the best life possible and giving back to Children’s Hospital.
“The hospital has saved our sanity on so many occasions.”
Have you ever had difficulty breathing? If so, you know what young Dallas Jonasson feels like every day.
When teenager Jonasson was only eight-weeks-old, he was diagnosed with cystic fibrosis (CF), a genetic disorder that primarily affects the lungs and digestive system. The build-up of mucus causes can make breathing a challenge. Currently there is no cure for CF.
Carla Bullied, Dallas’s mom, says that CF is having a larger impact on her son as he gets older.
“It’s getting tougher for him now. It wasn’t bad to begin with, but it is getting a lot tougher for him now. It’s progressing,” Bullied says. “He’s having a lot more hospital stays now and he’s sick a lot more of the time now.”
Bullied says that receiving the diagnosis that her son has CF wasn’t easy to deal with, but the care they’ve received from Children’s Hospital is appreciated by the family.
“Your world just ends when you’re told his life expectancy is 30–40 years old. You think of everything he’s not going to experience in his life,” she says.
“The hospital has saved our sanity on so many occasions. It doesn’t matter who it is, they will take the time to sit and talk with you if you’re not having a good day. He’s had the same doctors since he was diagnosed and they will still sit down for half-an-hour or an hour and discuss every little thing and ask him questions. They’re fantastic.”
Bullied says there was a six-year period when Dallas was doing well and didn’t have to come to the hospital other than for check-ups. However, Jonasson now visits the Children’s Hospital twice a year and is admitted for two or three weeks each time to receive treatment. He also comes to the Cystic Fibrosis Clinic every three months for regular check-ups.
To show his appreciation for the clinic and for all that the nurses and doctors at the hospital have done for him, in October Jonasson brought in a donation to the Children’s Hospital Foundation after collecting Canadian Tire money that he exchanged for cash.
“He wants everyone to be taken care of as well as he has and hopefully find a cure. He has high hopes of what he is going to do in life,” Bullied says.
“I don’t think most people realize how above and beyond the Children’s Hospital goes,” says Bullied. “I’ve never had a complaint about our medical system given what they’ve done for Dallas.”
Learn more about the upcoming Brandon Radiothon and how you can help make a difference. Your donations help patients and their families breathe a little easier.